Wednesday, June 27, 2012

Parent Involvement



I've been busy creating a Parent-Teacher Organization at Building Bridges.  I thought I'd be a member of 1, but several people showed up at the first meeting, giving me a lot of hope at organizing things further only to have the 2nd meeting not go so well.  The hard part is that volunteering is work; and with parents of spectrum children, they might not have the time nor the energy to do more.  I know I feel like I'm barely hanging on some days, so in some ways I can't blame them.  But, I'm pressing on.  My July meeting is coming up.  I have to see if I can track people down, see if we can come up with a better time to meet.  Then, maybe we can have a better turn out.

Traveling With Children on the Spectrum



It's summertime and many people will be going on vacations.  Some people will go on planes, and some will go by car.  Luckily, I have tips for traveling either way.

DRIVING

Driving for many children is difficult, in some ways I think my ASD children handle road trips much better than NT's (neuro-typical, what we call normal) children.  Mostly because they are visual and can enjoy the scenery and have a lot of patience for video games and reading.  They also seem to like the security of the seat belt.

1.  Make sure you have comfortable car seats.  I drive my children around a lot and when the seat gets flat and worn out, I get a new one.

2.  Try and plan out a stop, every 2 hours.  I have a great app to help you find travel centers.  It's called "AllStays Truck & Travel."  I have an iPhone so I don't know if they have an Android equivalent, but it's the best $5 I've spent on an app EVER.  It not only gives you the gas stations and travel centers, but also nearby shopping, in case you need to pick up something, like wal-marts and malls.  It also can give you up to the minute gas prices as well as maps and exit numbers.  I just LOVE IT!

3.  Try and give the children something new to play with after each stop.  Whether it's a new game for the 3DS, new iPod app, or a toy they've forgotten about.... it helps give them a renewed interest in something to take their minds off the travel.

4.  For my older Aspie, I like to share maps with her so she can see where we're going.  It also teaches her how to read a map;  a very useful skill.

5.  I recommend leaving early in the morning, as early as you possibly can.  My children and I drove south about 13 hours and it made the trip much more bearable leaving at 5:00 a.m.  Children's patience for things is best in the morning hours.  Once you get up around dinner and bedtime, they are a lot worse to manage in a vehicle.

6.  I would take small snacks to space out along the drive, capri suns, fruit snacks, granola, etc....  AND I would pack small bags for garbage, a box of tissues, a roll of paper towels and hand wipes.  You can never be too prepared!

FLYING
(I wrote this post on the website www.myautismteam.com under traveling tips.)

Flying with a non-verbal, lower functioning ASD child:

Go to the counter and ask for a special needs pass. It will let you board the plane first, alleviating the stress of so many strange faces in a crowded plane. I have had no behaviors with my son since I've done it. Some airline clerks are nice about it, others not so much. Ignore them. You're giving everyone a better plane ride because your child will not be stressed and screaming.

Flying with ASD children in general:

Electronic devices are great for planes but 2 things you need to think about....

1. Will my child freak out when they ask you to put this electronic device away? If they will, wait until you are in the air before giving it to your child. When you have to put it away, try and have a favorite snack, book, or other non-electronic something available to switch them out with.

2. Will my ASD child insist on playing a noisy game over and over at high volume? Try and make sure your phone, iPod, iPad, or other electronic device has some kind of volume control, or remove the games that are loud or otherwise obnoxious. If your child can do headphones....GREAT! If not, this will need to be something you will want to think about.

3. I make sure I have hand wipes available, clorox wipes (an ounce of prevention is worth a pound of cure....flying back with sick ASD kids is not something you want to do! That, and my 3 yr old stimms by biting his hand), and a small plastic bag for garbage.

Hope these thoughts helped. Happy traveling!

Wednesday, May 2, 2012

Too Much To Finish!


I've been busy!  I'll blog about my latest adventure in my next post.  But for now, I'm FINALLY finished with my quilts!  One is for my son, and one is for his ABA therapist's new baby.  If anyone out there has 2 children on the spectrum.....getting food cooked, laundry done, and the house cleaned is a feat in it of itself.  But, I got the quilts FINALLY done!  (It took a month.  Pre-Autistic kids, I could knock two out in a day!)

Friday, April 13, 2012

"Outgrowing Autism? Study looks at why some kids bloom"


"Outgrowing Autism? Study looks at why some kids bloom."

http://vitals.msnbc.msn.com/_news/2012/04/02/10946015-outgrowing-autism-study-looks-at-why-some-kids-bloom

I didn't even have to read that article to know why......
money.

That is what gets you early, intensive therapy.  Money, and lots of it.  I bet I spend around $2k in therapy and gas money to get out there.  It's not that I'm rich.....SO FAR FROM IT.  I am blessed enough to have family that care and who help me, and I scrimp, save, and never go anywhere or do anything.  All extra money goes there.  It really cheats my daughter who's higher-functioning because she needs therapy too.  But since my son is the lower functioning of the two, I have to put it there.  It's such a nightmare as a mother.  Trying to do your best for both of your children and always feeling like you're short-changing one, or the other, or both!  We don't go on vacations, I know my children won't be seeing Disneyland anytime soon...... it just breaks my heart.  But, I know there are many families who never get there, never go anywhere.  So I keep thinking about what I have and try and not focus on all the things others seem to be doing with their families all around me.  I'm lucky I have help.  I'm lucky I can get my son help.  Maybe I should have a four-leaf clover up there instead of a flower.  Maybe that will be my children's and my activity for tomorrow......to find a four leaf clover.

Thursday, April 12, 2012

Fragile X study

http://www.autismsupportnetwork.com/news/could-autism-be-reversed-pill-3789343

Interesting article.  It talks about Fragile X and some experimental drugs that may help this condition-described as traffic jams in the brain.

I've lived with Autism my whole life, my dad's family is riddled with it, my ex-husband had it, and both of my children have it.  This particular study was interesting to me because I can actually SEE when a neural "traffic jam" hits!  It's like they all get stuck on some idea they have.  Like a record player stuck on the same track…over and over…..and they can't let it go!  It's such a crazy, frustrating thing.  If this medication could control those neural "traffic jams" it would be wonderful and "meltdowns" wouldn't last so long. 

Monday, April 2, 2012

Autism Awareness Day



Today is Autism Awareness Day and what better way to celebrate than to say thanks to those who work with our children every day.  I love chocolate covered sunflower seeds and sunflowers.  But, since the Autism Awareness color is blue, I thought it more fitting to have blue flowers.  I attached the sunflower seeds with zip ties, cut the stems to varying lengths, made some puzzle pieces, and voila!  You have the perfect gift for 12 teachers!

Thursday, March 29, 2012

I Try



I wonder if some might read this blog thinking…."Why does she think she can say [anything] about Autism?"  I would say to them,  "I'm just a mom who has had family members with the disorder, an ex-spouse with the disorder, and 2 children with the disorder."  I want to share information and what I know or what I have found out.  Occasionally, I have information that can help someone.  And I like to help.  That's why I'm blogging.

Sometimes I try to be helpful on the Autism Networking sites.  I think that might get me in trouble.  Especially when people have such strong opinions about the disorder and how to treat it, how to talk about it, and how to do anything about it.  I post articles, videos, a study……make a few comments I think are non-bias and all the sudden everyone has claws out ready to go.  So, maybe I'll save those for my blog.  Hopefully I won't inadvertently offend anyone here.

I just emailed one of my son's old therapists in Utah to update her on his progress.  I wonder if therapists get annoyed with updates, or if they like to know how they have affected a little life.  They definitely have an effect on my life.  And I will never forget them.